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Local and National Resources

Periodicals

Brain Injury Journey Magazine

Momentum Magazine (MS)

New Mobility

Paraplegic News

The Parkinson Report

Project Action (Advocacy for accessible transportation in the US)

Sports ‘N Spokes  The magazine for wheelchair sport and recreation

Stroke Smart

Support Groups

Backbones
BACKBONES exists to provide free support for people with spinal cord injury and their families. Through our network we facilitate telephone, in-person, or web-based connections and encourage growth by the sharing of experiences and ideas

Brain Energy Support Team
The mission of BEST is to provide support, advocacy, public awareness, education, and socialization opportunities to individuals with a brain injury and their families.    1-877-719-BEST
Mailing address: 3800A Bridgeport Way W. #393   University Place, WA 98466
BEST Office: 2607 Bridgeport Way W 2G   University Place, WA 98466
Brain Energy Support Team Support Group Events Calendar

CareCure Community
CareCure has over 70 forums where we discuss everything from Life to Legislation & Advocacy, from Sports and Travel to Pain, from Computers to Politics.

Gig Harbor Self Help Group for MS Support– St Anthony’s Hospital,  Cancer Care Conference Room
11567 Canterwood Blvd. NW   Gig Harbor, WA 98332-5812
Meets the second Monday of the month from 6:30-7:30 p.m.   Contact: Sandy 360-895-3329

Pierce County MS Telephone Peer Support Network
These are private individuals with MS who are willing to talk with others who also have MS about what it is like to live with the disease; call when you want to talk    Laurie: 858-7261    Dorothy: 857-4492

Puyallup MS Support Group-Good Samaritan Hospital, Education Classroom
Ph: (253) 848-4330 or (253) 847-1467
14th Ave. SE  Puyallup   Meets third Sunday at 1:20 p.m.
Contact: Arlene Wilson or Barbara Miller 

Spanaway-Parkland, Graham MS Support Group
Whistlestop Restaurant,  22225 Mountain Hwy. E.
Meets the second Tuesday at 11 a.m.   No meeting in December or July
Contact the MS Society at (206) 284-4236

Tacoma MS Self-Help Group
Meets the second Friday of each month from 11:00 a.m. to 1:00 p.m.
Contact: Gregg Robinson, National MS Society, at 1 (800) 344-4867, press 2, then ext 40243, for information about meeting date and location

Tacoma Multiple Sclerosis Support Group
The Cherbas Center,  3701 Sixth Ave.  Suite 10   Tacoma, WA 98406
Ph: (253) 473-8781    12 noon – 1:30 p.m.

Puyallup (South Hill) Stroke Support Group
Courtyard at the Willows,  4690 Sixth Place SE  Puyallup
Meets fourth Monday of the month at 2 p.m.   Contact: ‘Red’ Scheyer  Ph: (253) 846-9028

Good Samaritan Hospital Rehab Center TBI Support Group
407 14th Ave. SE  Puyallup, WA 98372
Call for more information:  253-922-9184
Meets first and third Thursdays: 6-7:30 p.m.
Support group is for survivors, family, caregivers, friends and anyone who is interested in the brain injury community

HeadStrong
Support group for young survivors of brain injury and their families.  Programs include social events, mentor training and advocacy.

The Here and Now Project
A support network for Paralysis Survivors and their Supporters

Inspired

Multiple Sclerosis Society
Ph: (206) 284-4236
Client and community programs, support, advocacy and information

Northwest Parkinson’s Foundation- Support Groups
A support group is a group of people who help each other, share resources, ideas, and support each other so that you have an optimal life.  Each one is different and it’s particpants are in various stages of the disease. Call Maria at 206.946.6517 for more information.

Northwest Women Wheeler’s Network
A support and social network for women wheelchair users

Oregon Spinal Cord Injury Connection
A support and social network for Oregon residents with spinal cord injuries or disorders.

Paralyzed Vetrans of America-Washington
PVA Chapter- Northwest Chapter
616 SW 152nd Suite B   Burien, WA 98166   206-241-1843   800-336-9782
National Service Offices- Seattle VA Regional Office Henry Jackson Federal Building (71) 915 Second Ave., Rm 1054   Seattle, WA 98174   206-220-6149/6175/6176
SCI Office, Seattle 1660 S. Columbian Way, Rm 1-B-163   Seattle, WA 98108   206-768-5415

Pierce County – Listing of support groups by type
Fort Lewis – MS Support Group of Madigan
Call in to the MAMC Neurology Clinic
Madigan Army Medical Center, Neurology Clinic Conference Room
Meets first Thursday, 7-9 p.m.   Contact: Linda or Van Perdue

PROVAIL
Supporting People with Disabilities to Fulfill Their Life Choices
12550 Aurora Ave North   Seattle WA 98133   206-363-7303
Cerebal Palsy, UCP Affiliate

Spinal Cord Injury Model System Information Network
The University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS) maintains this Information Network as a resource to promote knowledge in the areas of research, health and quality of life for people with spinal cord injuries, their families, and SCI-related professionals.

Spinal Cord Injury Research and Advocacy

SPINALpedia
SPINALpedia is a social mentoring network and video archive that allows the spinal cord injury community to motivate each other with the knowledge and triumphs gained from our individual experiences.

TACIDTacoma Area Coalition of Individuals with Disabilities
TACID’s mission is to promote the independence of individuals with disabilities through peer support, advocacy and self-sufficiency programs.
6315 S 19th Street, Tacoma, WA  98466.  Contact:  Barbara Williams at barbara@tacid.org

Brain Injury Support Groups
Meets second and fourth Thursday of each month, 6:30-8:30 p.m.

CRPS (Complex Region Pain Syndrome) Support Group
Meets last Friday of each month, 3:00-4:30 p.m.

EDS (Ehlers-Danlos) Support Group
Meets third Friday of each month, 3:00-4:30 p.m.

MS Wednesday Support Group
Meets second Wednesday of each month from 6:30-8:30 p.m.

MS Friday Support Group
Meets second Friday of each month, 11:00 a.m. – 1:00 p.m.

Stroke Survivor Support Group
Meets third Thursday from 6:30-8:00 p.m.

Tacoma Amputee Support Group
Meets second Tuesday of each month, 6:00-8:00 p.m.

University of WA Spinal Cord Injury Forum

Young Adult Stroke Survivors
A support group of stroke survivors in the Seattle, Washington area. We also have members recovering from other brain injuries.

Blogs

Follow along with clients, caregivers, and others who are blogging about their experiences

Push Goddess

katieandbenupdates

Lovetheowens

allysjustsayin

chinaquaddiaries

Have a blog or know of a blog you’d like us to list?  Let us know!

Associations

Alliance of People with disAbilities
The Alliance provides empowerment and assistance to individuals with disAbilities in King County, WA.

American Association on Health and Disability
Dedicated to improve overall health and reduce health disparities for people with disabilities through health promotion and wellness.

American Parkinson Disease Association – Northwest Chapter
The APDA Northwest Chapter is a 501(c)(3) that provides information, resources, grants and more.

American Spinal Injury Association
Serving its members and all professionals in SCI medicine since 1973 – 2013.

BIAWA-Brain Injury Association of Washington
The Brain Injury Association of Washington (BIAWA) is dedicated to increasing public awareness, support, and hope for those affected by brain injury.

Center for Independence
The Center for Independence is a 501 (c) (3) organization serving as a resource for individuals with disabilities to fully access and participate in the community through outreach, advocacy, and independent living skills development.

The Cerebral Palsey Family Network
Cerebral Palsy Family Network is a 501(c)(3) non profit organization, whose mission is to provide medical and legal resources for families and their children with cerebral palsy.

Cerebral Palsy Guidance
Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance.

Christopher and Dana Reeve Foundation
National support and information community for people with paralysis.

Disability Rights Washington
Disability Rights Washington (DRW) is a private non-profit organization that protects the rights of people with disabilities statewide. Our mission is to advance the dignity, equality, and self-determination of people with disabilities. We work to pursue justice on matters related to human and legal rights.

Foundation for SCI Prevention, Care & Cure
The Foundation for Spinal Cord Injury Prevention, Care & Cure (FSCIPCC) is a non-profit educational group dedicated to the prevention, care and cure of spinal cord injuries through public awareness, education and funding research.

Life After SCI
Located in Georgia, Life After Spinal Cord Injury [LASCI] is a motivational program for people with disabilities, rehabilitation programs, medical education seminars and other community events.

PAVE – Partnerships for Action Voices for Empowerment
PAVE, a non-profit organization, exists to share information and resources with people whose lives are linked to children and adults with disabilities.

SCI Action Canada  SCI Action Canada will develop and mobilize strategies to inform, teach  and enable people living with SCI to initiate and maintain a physically  active lifestyle.

Spinal Cord Injury Association of Washington
Spinal Cord Injury Association of Washington is the Washington State organization for people with spinal cord injuries and for all committed to helping them.  Programs include Build-A-Ramp, which provides ramp free of charge to qualifying individuals, and Peer Mentoring.

SCI Sucks (SCIS)
The public knows very little about the true nature of spinal cord injury (SCI).  This disconnect between public understanding of the condition and the suffering of the severely disabled reduces the urgency with which we seek a cure.  SCIS seeks to reveal the uncensored truth about SCI and its side effects.  By educating about the public health emergency of paralysis and correcting incorrect information often disseminated by the disabled community itself, SCIS hopes to advance and empower cure research.

Tacoma Area Coalition of Individuals with Disabilities
TACID assists people with disabilities to overcome community and personal barriers to be successful in reaching their goals in life.

Traumatic Brain Injury Advisory Council– DSHS
Washington Traumatic Brain Injury Strategic Partnership Advisory Council-created from House Bill 2055 approved by the Washington State Legislature in 2007.

United Spinal Association
Founded in 1948 to improve the lives of all paralyzed Americans. Our mission is to improve the quality of life of all people living with a spinal cord injury or disease. We provide active-lifestyle information, peer support and advocacy that empower individuals to achieve their highest potential in all facets of life.

Miscellaneous

Morph-O-Scopes by OOZ and OZ
A unique brain game/toy for all ages with TBI, Stroke or MS.

If you have information on additional support groups, associations (local and national),  or forums, or if you find inaccuracies in this information, contact us so we can share the information.  Thanks!